The life expectancy of a child born with Trisomy 17p isn’t long, but little Rosslyn Henderson has beaten the odds.
They said one year, said Rosslyn’s grandmother, Rhonda Osterhaus. We’ve made it to three years, so it’s a miracle. She’s our miracle baby.
However, Osterhaus said living with the disorder, which severely limits her mobility and development, is a daily struggle.
She’s 24-hour care, she has a feeding tube, Osterhaus explained. She can’t crawl, she can’t walk, her vocabulary is just one or two words.
On Saturday, The Teufelhund Veterans Club were trying to help Rosslyn and her family as much as possible, by riding and raising money. They gathered at the Chrome Horse Saloon to kick off their benefit ride.
We have a raffle, we have t-shirts, bracelets, and of this stuff was donated by businesses locally, said Sergeant-at-Arms Will Gunny Summy.
There are no set goals. They just do what they can.
We just rely on people’s hearts to come together, like they did today, Summy said.
The money raised will go toward Rosslyn’s medical needs. As she continues to fight and overcome expectations, she’s getting old enough to be in pre-school.
They’ve got to get her to where she can try to sit up. She’s got to have special medical equipment to try to sit up, Osterhaus told us. They have a little computer they’re hoping to get to where it will say mom, I want milk, hungry.’
Anything that will help make her life - and her family’s lives - easier.
It’s been heartwarming, with all of the people coming together, the Chrome Horse, the family members, the vets coming out to support her, Summy told us.